IHF’s Global Rare Paediatric Disease Network is a community for IHF members working in rare paediatric disease to share experiences and best practices to improve the services provided to children and their families around the globe.

In this episode, Barbara Walczyk-Joers, President and CEO at Gillette Children's Specialty Health Care sat down with Ee Shien Tan, head of Clinical Genetics in Care Women's and Children's Hospital in Singapore and Heini Kanervo, rare diseases coordinator at University Hospital Brussels.

In this engaging podcast, they discuss the challenges and opportunities for the adoption of AI in all aspects of hospital management. What are the specific considerations when it comes to rare paediatric disease? Tune into a fascinating discussion with members of the IHF’s Global Rare Paediatric Disease Network to find out.

Gillette Children’s Specialty Healthcare, USA

Barbara Walczyk-Joers

President and Chief Executive Officer

Ms Walczyk-Joers has served as President and CEO at Gillette Children’s Specialty Healthcare in Minnesota, USA since 2013.  As the USA’s first hospital dedicated to serving children...

Gillette Children’s Specialty Healthcare, USA

Barbara Walczyk-Joers

President and Chief Executive Officer

Ms Walczyk-Joershas served as President and CEO at Gillette Childrens SpecialtyHealthcare in Minnesota, USA since 2013. As the USAs first hospital dedicated to serving children who havedisabilities, Gillette Childrens provides subspecialized care to children who havecomplex, rare or traumatic conditions affecting the performance of an individuals musculoskeletal and neurological systems.

With morethan25 years ofhealthcare experience, Ms Walczyk-Joers has a focus on strategic performance and change management as well as health policy and advocacy. She has served in executive roles in a variety of pediatric and adult healthcare settings, including academic healthcare centres, community health systems, and independent children’s hospitals. Earlier in her career she also served at a professional services firm. 

A recognized thought leader in healthcare,Ms Walczyk-Joers serves as the Chair of the Board of Directors of Childrens Miracle Network Hospitals. She is also a member of the Board of Directors of the Medical Alley Association and the Quality and Safety Committee of the Board of the Children’s Hospital Association. Ms Walczyk-Joers is an active participant in other organizations including the American Hospital Association and the Minnesota Rare Disease Advisory Council.

Ms Walczyk-Joers studied acute care hospital management at Marymount University and holds a Master’s in Health Services Management and Policy from George Washington University.

University hospital Brussels, Belgium

Heini Kanervo

Rare Diseases Coordinator

Heini is a Registered Nurse with a Masters degree in nursing and midwifery. She currently works at the University Hospital of Brussels as the coordinator...

University hospital Brussels, Belgium

Heini Kanervo

Rare Diseases Coordinator

Heini is a Registered Nurse with a Masters degree in nursing and midwifery. She currently works at the University Hospital of Brussels as the coordinator of the Reference Centre for Rare Diseases. She aims to increase rare disease awareness and improve quality of care for people with a rare disease through clinical care, research, and education. Her previous work experience includes cancer research coordination and nursing care in paediatric oncology neurology. At age 18, she was diagnosed with Lupus, a rare autoimmune disease.

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