Heini Kanervo

Rare Diseases Coordinator

University hospital Brussels, Belgium

Heini is a Registered Nurse with a Masters degree in nursing and midwifery. She currently works at the University Hospital of Brussels as the coordinator of the Reference Centre for Rare Diseases. She aims to increase rare disease awareness and improve quality of care for people with a rare disease through clinical care, research, and education. Her previous work experience includes cancer research coordination and nursing care in paediatric oncology neurology. At age 18, she was diagnosed with Lupus, a rare autoimmune disease.